MovDisordV3, Main, Exploration, bibRecord, 003773

Proxy reports in Parkinson's disease: Caregiver and patient self‐reports of quality of life and physical activity

Identifieur interne : 003773 ( Main/Exploration ); précédent : 003772; suivant : 003774

Proxy reports in Parkinson's disease: Caregiver and patient self‐reports of quality of life and physical activity

Auteurs : Allison Fleming [États-Unis] ; Karon F. Cook [États-Unis] ; Naomi D. Nelson [États-Unis] ; Eugene C. Lai [États-Unis]

Source :

Movement Disorders [ 0885-3185 ] ; 2005-11.

RBID : ISTEX:80E802534A3F78F45FC8D756C188F047B12C8C28

Descripteurs français

Pascal (Inist)
- Aidant, Evaluation, Homme, Parkinson maladie, Qualité vie, Système nerveux pathologie.
Wicri :
- topic : Homme.

English descriptors

KwdEn :
- Aged, Aged, 80 and over, Caregiver, Caregivers, Confidence Intervals, Data Collection (methods), Evaluation, Female, Human, Humans, Male, Motor Activity (physiology), Nervous system diseases, PDQ‐39, Parkinson Disease (physiopathology), Parkinson Disease (psychology), Parkinson disease, Parkinson's disease, Proxy, Quality of Life, Quality of life, Questionnaires, Sickness Impact Profile, health‐related quality of life, proxy evaluation.
MESH :
- methods : Data Collection.
- physiology : Motor Activity.
- physiopathology : Parkinson Disease.
- psychology : Parkinson Disease.
- Aged, Aged, 80 and over, Caregivers, Confidence Intervals, Female, Humans, Male, Proxy, Quality of Life, Questionnaires, Sickness Impact Profile.

Abstract

We evaluated patient–proxy agreement in a population of veterans with Parkinson's disease and compared levels of agreement by patient subgroups. Patient and caregiver pairs completed questionnaires composed of standard measures and additional demographic and activity questions. Participants completed the Center for Epidemiologic Studies Depression Scale (CES‐D), the PD Questionnaire 39 (PDQ‐39), and three questions regarding physical activity. Caregivers completed proxy forms of the PDQ‐39 and the physical activity questionnaire. The proxy forms asked caregivers to choose the answers that best described their “friend's/patient's situation.” The results of our comparison of patient and proxy reports of quality of life were consistent with findings in other diseases. On average, proxies rated patient disability higher and quality of life lower than did patients. However, our comparison of patient and proxy reports of frequency of exercise diverged from previously published work. Less agreement was observed between patient and proxy reports of physical activity, even though this is a more objective variable than are the domains measured by the PDQ‐39. Proxy reports may diverge appreciably from patient self‐reports. These differences should be considered in research design and clinical decision making. Alternative approaches to the measurement of patient relevant outcomes could supplement traditional, retrospective self‐reports. © 2005 Movement Disorder Society

Url:

https://api.istex.fr/document/80E802534A3F78F45FC8D756C188F047B12C8C28/fulltext/pdf

DOI: 10.1002/mds.20592

Affiliations:

Le document en format XML

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<front><div type="abstract" xml:lang="en">We evaluated patient–proxy agreement in a population of veterans with Parkinson's disease and compared levels of agreement by patient subgroups. Patient and caregiver pairs completed questionnaires composed of standard measures and additional demographic and activity questions. Participants completed the Center for Epidemiologic Studies Depression Scale (CES‐D), the PD Questionnaire 39 (PDQ‐39), and three questions regarding physical activity. Caregivers completed proxy forms of the PDQ‐39 and the physical activity questionnaire. The proxy forms asked caregivers to choose the answers that best described their “friend's/patient's situation.” The results of our comparison of patient and proxy reports of quality of life were consistent with findings in other diseases. On average, proxies rated patient disability higher and quality of life lower than did patients. However, our comparison of patient and proxy reports of frequency of exercise diverged from previously published work. Less agreement was observed between patient and proxy reports of physical activity, even though this is a more objective variable than are the domains measured by the PDQ‐39. Proxy reports may diverge appreciably from patient self‐reports. These differences should be considered in research design and clinical decision making. Alternative approaches to the measurement of patient relevant outcomes could supplement traditional, retrospective self‐reports. © 2005 Movement Disorder Society</div>
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Movement Disorders (revue)

Proxy reports in Parkinson's disease: Caregiver and patient self‐reports of quality of life and physical activity

Proxy reports in Parkinson's disease: Caregiver and patient self‐reports of quality of life and physical activity

Source :

Descripteurs français

English descriptors

Abstract

Links toward previous steps (curation, corpus...)

Le document en format XML

Pour manipuler ce document sous Unix (Dilib)

Pour mettre un lien sur cette page dans le réseau Wicri

	Movement Disorders (revue)
	Attention, ce site est en cours de développement ! Attention, site généré par des moyens informatiques à partir de corpus bruts. Les informations ne sont donc pas validées.